The EDS GP toolkit is provided by The Ehlers-Danlos Support UK

What is the GP toolkit?

This toolkit was developed and last updated by the Royal College of GPs (RCGP) in 2018, in partnership with Ehlers-Danlos Support UK. The toolkit was hosted by the RCGP between May 2018 and November 2021. Since November 2021, it has been solely owned and updated by Ehlers-Danlos UK and since the change in ownership, the RCGP have no ongoing or further responsibility or liability for the webpages or content.

Development of this toolkit in 2018 was led by Dr Emma Reinhold, with contributions from pharmacist Lisa Jamieson MSc, Prof. Lesley Kavi, Dr Hanadi Kazkaz, Dr Alan Hakim, Nikki Paiba, Dr Gemma Pearce, Dr Philip Bull and Jan Groh. The toolkit was hosted by the RCGP between May 2018 and November 2021.

With thanks to Associate Professor Gemma Pearce and Emily Edwards from Coventry University’s Centre for Healthcare Research and to Claire Smith of Redcliffe House Publications for referencing the toolkit.

Update: The toolkit was reviewed in early 2023 by Dr Ben Frankel MBBS MRCGP; Dr Paul Brennan FRCPConsultant in Clinical Genetics, Northern Genetics Service and Clinical Senior Lecturer in Genetic Medicine, Newcastle University; Dr Jill Halstead-Rastrick, Clinical Lead in Podiatry and Research at Leeds Community Healthcare NHS Trust and Dr V.Saravanan, Joint Clinical Lead for Rheumatology, QE Hospital, Gateshead.  We are grateful for the reviewers’ time and feedback. Further updates will be made when resources allow.